Teddy bear being stung with a needle

How can we make eHealth support minors living with chronic diseases?

Background

While studies have provided insights into the complexities of introducing eHealth technologies to adult patients and informed models for choosing or designing more flexible and individualized arrangements, little is known about eHealth for minors below the age of 16. Reviews speak to the potential of eHealth for minors but consistently demonstrate weak and mixed evidence. Sometimes the solutions are neglected by the users and sometimes you can’t see a positive effect on the disease management. Qualitative studies have suggested that there are other issues of concern when creating eHealth for minor patients.

Project objectives

This project hypothesizes that this mix of evidence can partly be explained by the varying capacity of different eHealth technologies to resonate with every day self-management tactics. The purpose of the research is to establish scientific ground for meaningful technologies that increase minor patients’ opportunities, abilities and motivation for acting and taking responsibility for treatment, thus improving disease management in everyday life. The project will generate knowledge about what makes minors a special group for using technologies in everyday disease management, what are minors and their relatives’ self-initiated tactics for management and how do these correspond to developments in eHealth solutions for minors. The scientific results will serve as a basis from which practical and effective models can be drawn that will inform future eHealth initiatives for minors.

References

  • An, J.-Y., Hayman, L. L., Park, Y.-5., Dusaj, T. K., & Ayres, C. G. (2009). Web-based weight management programs for children and adolescents: a systematic review of randomized controlled trial studies.
  • Andersen, T., Bansler, J., Kensing, F., Moll, J., & Nielsen, K. D. Alignment of concerns: a design rationale for patient participation in eHealth. In System Sciences (HICSS), 2014 47th Hawaii International Conference on (2014) (pp. 2587-2596). IEEE.
  • Ballegaard, Stinne, Mille K. Thorsen, and Helle Sofie Wentzer. "TeleMatchmodellen kan være en hjælp ved valg af den rigtige telemedicinske løsning: Kvalitetsudviklingsartikel." Ugeskrift for Laeger (2015).
  • Deacon, A. J., & Edirippulige, 5. (2015). Using mobile technology to motivate adolescents with type 1 diabetes mellitus: A systematic review of recent literature. Journal of Telemedicine and Telecare, 21(8), 431-438. doi: 10.1177 /1357633x15605223
  • Fisher, E., Law, E., Palermo, T. M., & Eccleston, C. (2015). Psychological therapies (remotely delivered) for the management of chronic and recurrent pain in children and adolescents. The Cochrane Library.
  • Guljas, R., Ahmed, A., Chang, K., & Whitlock, A. (2014). Impact of telemedicine in managing type 1 diabetes among school-age children and adolescents: an integrative review. Journal of pediatric nursing, 29(3 ), 198-204.
  • Marcano Belisario, J. 5., Huckvale, K., Greenfield, G., Car, J., & Gunn, L. H. (2013). Smartphone and tablet self management apps for asthma. Cochrane Database Syst Rev, 11(11).
  • Nickels, A., & Dimov, V. (2012). Innovations in technology: social media and mobile technology in the care of adolescents with asthma. Current allergy and asthma reports, 12(6), 607-612.
  • Wesley, K. M., & Fizur, P. J. (2015). A review of mobile applications to help adolescent and young adult cancer patients. Adolescent health, medicine and therapeutics, 6, 141.
  • Ye, X., Bapuji, S. B., Winters, S. E., Struthers, A., Raynard, M., Metge, C., Kreindler, S. A., Charette, C. J., Lemaire, J. A., & Synyshyn, M. (2014). Effectiveness of internet-based interventions for children, youth, and young adults with anxiety and/or depression: a systematic review and meta-analysis. BMC Health Services Research, 14(1), 1.

FUNDING

region H logo
eMinor is funded by CACHET and Telemedicinsk Videncenter I Region Hovedstaden

Contact

Claudia Bagger-Petersen
PhD student
Department of Public Health

Contact

Henriette Langstrup
Associate Professor
Department of Public Health
http://www.cachet.dk/research/phd-projects/eminor
17 DECEMBER 2018